Monday, Mar 2nd, 2020……
This morning we left for the hospital in groups. Jeff has been hit with
a cold or allergies so he went by himself early this morning. He masked up and stayed well away from his mom
so she wouldn’t get any germs. Eddie stayed home this morning. He’s recently
been in the hospital and had a collapsed lung on top of that so he needed some
rest. He is in the motorhome, with all the amenities so he hung around there
for the day. Randy and I met the girls at Jack in The Box and had breakfast. We
had to go there for Tia, who was super excited because they don’t have JITBs in
Wisconsin. Lydia was in dialysis when we got there. Doctors have told her that
she will be on scheduled dialysis from now on because the chemo has shut down
the kidney. We have a meeting tomorrow morning with the oncology doctor
regarding future care.
Tuesday, Mar 3rd, 2020…… We all got up and got going. The
girls came over and we set up a roast in the crockpot for dinner tonight. Then
we left and went to Shari’s for breakfast before going to the hospital for our
meeting. Jeff had left way earlier. Ed didn’t make breakfast and went later to
the hospital on his own.
Now for
the reality check. The doctors told us they don’t think, with her compromised
system, that she can take another round of chemo now. Her oncology team will
have more to say about that but they wanted all of us to be aware of it for the
immediate future. That’s tough because she needs that to fight the cancer. Right
now she is doing physical therapy and when she gets to a stronger level they
will be able to transfer her from the hospital to a rehab center for more
therapy. She will also be transported to dialysis from there 2-3 times a week.
They also
went over her advance directive. It went as expected. She doesn’t want any help
with devices to prolong life and has a dnr in place. I understand and respect
that - we have talked about it many times and I am of the same opinion when my
time comes. While it is not something
anyone wants to talk about, it has to be done so that is over with now. We left
her to rest and went back home and rested as well. Later, we headed over to Pizza Schmizza for
dinner. Most everyone now has travel plans made. Jeff leaves early tomorrow
morning, Frances leaves tomorrow evening, Ed and Tia plan on leaving Thursday,
Randy has made his flight arrangements for early Thursday as well.
Ed went
home and the rest of us went back to see her after dinner. The girls had a
surprise for her. They each did purple streaks in their hair! They did Lydia's hair too!
Wednesday, Mar 4th, 2020……
Today was another good day. The feeding tube is
still in but the speech therapist who tests her vocals and swallow ability says
she can go on to a more solid food diet now.
She had part of a sandwich today and some fruit and yogurt. The goal is
to get to a full menu soon because the feeding tube does have a shelf
life. If she can’t get enough
calories/proteins/carbs, etc., then she will need to have a more permanent feeding
tube going in a port on her side directly to the stomach. There are no
timeframes for anything yet. Jeff left this morning. Frances leaves this
evening. Randy flies out early tomorrow. Ed and Tia said they are planning on leaving
tomorrow driving back to Wisconsin. Maryanne and Cherrelyn are planning visits
next week.
No comments:
Post a Comment